The Herald, Sharon, Pa.

Breaking News

Local News

March 14, 2013

Dying writer pens memoir for her family

HERMITAGE — An award-winning journalist with family ties to Hermitage, has published the journey of her final days battling Lou Gehrig’s disease, told in her memoir, “Until I Say Goodbye - My Year of Living With Joy.”

The book, published by Harper Collins, was released Tuesday. A movie deal is in the works.

Susan Spencer-Wendel, 45, recently resigned from her longtime position as an award-winning court reporter for the Palm Beach Post, after a 2011 diagnosis of amyotrophic lateral sclerosis left with her with dwindling muscle control that she knew would shortly result in paralysis and eventually in death.

Married to John Wendel, whose parents Janet and Dick Wendel live in Hermitage, she made the decision to make the most of the time she had left, sharing special memories meant to last a lifetime for her husband and each of her three children, Marina, Aubrey and Wesley.

Susan and John took a trip to Budapest, Hungary, to celebrate their 20th anniversary and recall the years they spent there while he was on a Fulbright Scholarship to teach English. She started a newspaper while she was there.

Since her diagnosis, she has swam with dolphins and traveled to the Yukon to see the Northern Lights with her best friend, Nancy.

She relies on her husband to do the physical work for her. He bathes and dresses her, feeds her and has learned to do her hair.

Her speech, when she can speak, is garbled, her  her mother-in-law said.  But Wendel is able to understand her and speaks for her.

She tapped out the entire book on her iPhone, using her right thumb, the only part of her she can move. Near the end of the book, she relied on eye-movement technology to finish the typing. The book was co-written by friend and writer Bret Witter.

She spends her days in a specially built “Chickadee” hut in the yard where she is just now reaching the pinnacle of her writing career, but well aware that time is very limited, her mother-in-law said.

The entire family of 40 spent the holidays together and Susan writes on her Facebook page that she thinks it will be the last holiday they spend together. She asked for rings for Christmas that she could pass on to her daughters.

Her husband, once a pharmaceutical sales representative, quit his job to care for her.

A book advance of $2.3 million, along with another couple million in movie rights have secured her family’s financial future, but “there was so much more Susan wanted to say. She wanted to make memories for her family because she knew she wouldn’t be around,” Mrs. Wendel said.

Wendel has said he is considering going back to school after Susan’s death to become a physician’s assistant and his wife has written “Good! That makes me happy!”

She also writes in the book that her husband told her upon learning of her diagnosis “the least I can do for you is everything.”

She took her teenage daughter, Marina, bridal shopping in New York City, because she knew she wouldn’t be around for the day her daughter walked down the aisle.

She writes in the book that she wanted “her to remember the day we shopped for dresses. I wanted to see her in a wedding gown. And for her to remember that I was happy and smiling.”

She also traveled to California recently became reunited with her birth mother, and to Cyprus, the home country of the birth father she never knew, Mrs. Wendel said.

Her message to her family is not to grieve, Mrs. Wendel said.

“She told John she expects him to marry again, to find love and find someone who will run triathlons with him,” Mrs. Wendel said.

The book and her story has been chronicled on NPR, Today, and numerous media outlets.

The author, and her husband, will be at book signings in West Palm Beach, Fla., on Saturday, where she will thumbprint copies to autograph books.

Text Only
Local News
  • Council takes ‘baby step’ toward exiting Act 47

    For 26 years, Farrell’s been in financial trouble.

    May 21, 2013

  • Drug tests get tentative board OK

    Carol Sloan, a Hermitage resident, had three concerns about the proposed voluntary student drug testing program in Hermitage schools, one of which was the possibility of spending tax dollars on the program.

    May 21, 2013

  • School board proposes 1st tax hike in 6 years

    Hermitage School Board is proposing the first property tax hike since 2007-08 under a 2013-14 budget tentatively approved Monday.

    May 21, 2013

  • School district facing big deficit and hard choices

    Sharon City School Board on Monday unanimously approved a preliminary budget for the 2013-14 school year includes a $2 million deficit.

    May 21, 2013

  • More than a million in Pa. denied right to vote

    More than 1 million registered voters in Pennsylvania will be barred from casting a ballot Tuesday because the state only allows registered Democrats and Republicans to participate in the primary election.

    May 21, 2013

  • District reserves to cover $500,000 shortfall

    Although Mercer Area School District has a $500,000 shortfall in its budget for the coming school year, school directors do not plan to raise taxes.

    May 20, 2013

  • Yes and no on voter ID

    After another “dry run” of a voter ID law under legal review, Pennsylvania voters might start chafing.

    May 20, 2013

  • Crash claims 21-year-old

    A 21-year-old Sandy Lake man was killed early Saturday when he lost control of his car and rolled it several times on Hadley Road, Perry Township.

    May 19, 2013

  • UPMC to judge: Throw out bias claim

    UPMC Horizon has asked a federal judge to throw out a former employee’s claim that he was discriminated against because of his gender.

    May 19, 2013

  • Judge Christopher St. John Judicial daily double

    This year marks the first time in the county’s 209 years as a judicial district that voters have the opportunity to choose a new judge, while also deciding whether to retain an existing one.

    May 19, 2013 1 Photo